News
This year, our highly anticipated annual Comic Vision and Last Call comedy fundraising events joined to bring a new virtual comedy night experience, ‘Comedy from the Couch’ that took place on Saturday,…
Read More about Sharing the Laughter. Seeing the Hope.
On October 14, 2020, Health Canada announced their approval of the first targeted gene-therapy treatment voretigene neparvovec (Brand name: Luxturna) for an inherited retinal disease (IRD). This announcement is the first targeted…
Read More about THE FUTURE IS BRIGHT: HEALTH CANADA APPROVES FIRST SIGHT-RESTORING GENE THERAPY FOR INHERITED EYE DISEASES
Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt…
Read More about New study shows staggering costs of Inherited Retinal Diseases
INTRODUCTION My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa (RP) and age-related macular degeneration (AMD). In my writing, I want to acknowledge both…
Read More about THE WAY I SEE IT BLOG SERIES: THE BEST THINGS IN LIFE
October is an exciting month for Fighting Blindness Canada’s Young Leaders Program. Established in 2015, the Young Leaders Program provides blind or partially sighted people aged 15-30 with tools to develop skills…
Read More about Introducing FBC’s 2020 Young Leaders Program Co-Chairs
Meet the Expert: Dr. Robert Koenekoop is a Montreal-based clinician-scientist, meaning he is both a medical doctor, trained in Ophthalmology and also does research about inherited retinal diseases (IRDs). He’s also a…
Read More about Looking into the genetics of inherited retinal diseases with Dr. Rob KoenekoopJoin the Fight!
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